Improving information interactions for patients, clinicians, and biomedical researchers.
 

LitLinker
The explosive growth in biomedical literature has made it difficult for researchers to keep up with the advancements, even in their own narrow specializations and to explore connections to their own work from other parts of the literature. LitLinker is a text mining system that incorporates knowledge based technologies, natural language processing techniques and data mining algorithms to mine the biomedical literature for new, potential causal links between biomedical terms. Click on the LitLinker icon to the right to try out LitLinker.

Text Mining
The design of LitLinker is based on the Swanson's open dicovery approach. LitLinker starts with a provided starting concept, which specifies the concept that the researchers wants to investigate. Next, LitLinker goes through a text mining process to find a set of terms (linking concepts) that are correlated with the starting concept. For each of the linking concepts, LitLinker uses the same text-mining process to identify a set of terms (target concepts) that are correlated with the linking concepts. Finally, LitLinker groups and ranks the target concepts by the number of linking concepts that connect the target concept to starting concept.

Text Mining Interface
LitLinker returns a complex set of data with connections between medical concepts that are new to users. Because these connections are new, one of the most important aspects of the LitLinker interface must be the ability to examine how the connections were generated. The interface must help the user understand the text-mining process and allow them to examine how the terms are connected in the scientific literature. In order for users to understand how the connections were generated an important aspect of the interface must be helping users understand the difference between the three types of terms and how they are each involved in the text-mining process. While helping the user form a conceptual model of how the connections were generated we must also keep the interface simple enough that it will not overwhelm the user. This is a challenge and a great opportunity to apply information visualization techniques to the text-mining process.

Metamap Evaluation
Metamap is a tool created by NLM that identifies medical terms in free form text. Although many system developers in biomedicine used this tool as part of their systems, few have studied how well it accomplishes the task of medical term identification in general. In this project, we conducted a study to evaluate the results of Metamap with medical concepts identified by a group of six medical researchers.

Information and the Cancer Experience
The goal of the information-and-the-cancer-experience project is to inform the design of new systems and services to support people receiving outpatient treatment for cancer. We begin with the premise that it takes work to be a patient in the current cancer care system. For example, people facing cancer must navigate the healthcare system, understand their evolving health status, and participate in their treatment. Many patients—regardless of socioeconomic status—encounter difficulties completing information-based tasks including managing their patchwork of treatment referrals, comparing different treatment options, remembering information from healthcare consultations, organizing information for future reference, locating information at the point of need (e.g., emergence of a side effect), or simply figuring out who to talk to about what. The prevalence of outpatient cancer care places additional burden on patients by leaving them to manage many tasks away from the treatment center. Our approach is to use socio-technical techniques to examine patient activities as work. A primary objective of our research is to inform the design of new support systems that reduce the cognitive load placed on cancer patients as they traverse the treatment system, manage personal health information and receive quality health care. Such systems can free up valuable time and energy that allow individuals facing cancer to focus more personal energy on the intangible tasks of health, healing, and wellness.

Visualization of Quality in online health information
Health care consumers increasingly turn to the World Wide Web for health information to support active participation in their health care. However, the quality of this information is highly variable. Therefore, consumers need tools that help them distinguish high quality from low quality resources. We reviewed a range of methods for evaluating online health information quality from which four prominent dimensions of quality emanate: content, usage, authorship, and publication. This multidimensional framework provides an organizational structure for characterizing online health information. We are using this framework to visually represent health information search results to better inform consumers about the quality of information they retrieve online.

DynaCat

When people use computer-based tools to find answers to general questions, they often are faced with a daunting list of search results or "hits" returned by the search engine. Many search tools address this problem by helping users to make their searches more specific. However, when dozens or hundreds of documents are relevant to their question, users need tools that help them to explore and to understand their search results, rather than ones that eliminate a portion of those results. By organizing search results into meaningful categories, search tools can provide a query-sensitive summary of the kinds of information found. Such a summary can help the user to learn about those search results and to decide what areas to explore further. I have developed an system called DynaCat that automatically dynamically categorizes search results into such a hierarchical organization by using knowledge of the user's query and a model of the domain terminology.

Results from a user study showed that breast cancer patients and their family members could find significantly more answers in a fixed amount of time, and were significantly more satisfied with their search experience when they used DynaCat than when they used either a cluster tool or a standard ranking tool. Subjects indicated that DynaCat provided an organization of search results that was more clear, easy to use, accurate, precise, and helpful than those of the other tools.

University of Washington
Information School
Biomedical and Health Informatics
(c) 2004 iMed